NCUIH August Policy Update: Senate Confirms Mark Cruz as IHS Director, UIO FMAP Updates, and FY 2027 Appropriations

In this Edition:

  • Questions for UIOs: Request for Input and Feedback
  • Senate Confirms Mark Cruz as Indian Health Service Director
  • Federal Leaders Visit Arizona UIOs
  • Federal Medical Assistance Percentage (FMAP) Updates
  • New NCUIH Medicaid Resources
  • Fiscal Year 2027 Appropriations Status and Updates
  • NCUIH Speaks at Congressional Briefing Launching the Native Children’s Commission Implementation Act
  • NCUIH Endorses Bill to Improve Public Health Emergency Preparedness for Indian Health Care Providers
  • Submitted Federal Comments (H.R. 1 Implementation and Special Diabetes Program for Indians Funding) and Upcoming Comment Opportunities
  • Upcoming Events, Policy Dates, and Funding Opportunities

Questions for UIOs: Request for Input and Feedback

  • Rural Health Transformation Program (RHTP): NCUIH is gathering UIO experiences with RHTP and requests that Urban Indian Organizations let NCUIH know if their organization receives funding and how you are engaging with your state. More information on the Rural Health Transformation Fund is available on the NCUIH Policy Resource Center Webpage.
  • Special Diabetes Program for Indians (SDPI) 25% Supplemental Funding:IHS announced that current SDPI grant recipients will receive a Calendar Year 2026 administrative grant supplement totaling 25% of their annual SDPI grant award using one-time, unobligated funding. Have any UIO SDPI grantees received their supplemental funding?
  • UIO Listening Session with the Indian Health Service (IHS) Division of Behavioral Health (DBH): NCUIH is facilitating a virtual UIO listening session with IHS DBH on September 17, 2026, at 1:00 PM ET. Register at ncuih.org/events. Please let us know any questions you have for DBH, behavioral health challenges and successes at your UIO, and topics you want covered during the session.

Responses can be sent to policy@ncuih.org.

Senate Confirms Mark Cruz as Indian Health Service Director

On August 7, 2026, the Senate confirmed Mark Cruz, a citizen of the Klamath Tribes, as Director of the Indian Health Service (IHS). NCUIH submitted questions for the record ahead of his June 24 nomination hearing, including on IHS’s role in supporting Urban Indian Organizations (UIOs) and efforts to secure 100% Federal Medical Assistance Percentage (FMAP) for UIOs.

NCUIH will continue to engage with Director Cruz and IHS on priorities including full and stable funding for IHS including urban Indian health, Medicaid parity for UIOs, and investments in Native behavioral health programs.

[Read the full Blog Post]

Federal Leaders Visit Arizona UIOs

Dr. Caprice Knapp (CMS), Erin Tawney (HHS), and other agency representatives visited the NATIVE HEALTH Phoenix clinic alongside Native American Connections and NCUIH. The visit highlighted how UIOs are transforming Medicaid and Children’s Health Insurance Program (CHIP) coverage into improved health outcomes for Native communities.

NCUIH also joined the HHS Administration for Native Americans (ANA) and Pew Charitable Trusts in a visit to Native American Connections to see firsthand how UIOs provide culturally responsive care to American Indian and Alaska Native people in urban settings.

We thank CMS, HHS, and Pew for joining us in showcasing the important role of Urban Indian Organizations in the Indian Health System.

Federal Medical Assistance Percentage (FMAP) Updates

  • Current legislation:The bipartisan Urban Indian Health Parity Act (H.R. 4722) would provide 100% federal medical assistance percentage (FMAP) for services provided to Medicaid beneficiaries at UIOs.
NCUIH Joined the Centers for Medicare & Medicaid Services Tribal Technical Advisory Group in Hill Meetings on AI/AN Medicare and Medicaid Priorities, including 100% FMAP for UIOs.
  • On July 27, NCUIH joined the CMS Tribal Technical Advisory Group (TTAG) Hill Day to provide education on TTAG Medicare and Medicaid priorities, including 100% FMAP for UIOs.
  • Offices visited: Sens. Baldwin (D-WI), Smith (D-MN), Cassidy (R-LA, HELP Chair), Johnson (R-WI), Slotkin (D-MI), Peters (D-MI), Murkowski (R-AK), and Merkley (D-OR).

New NCUIH Medicaid Resources

  • Updated Resource: Overview of the Impact of Medicaid on Health Care for American Indian and Alaska Native People— refreshed data on American Indian and Alaska Native (AI/AN) Medicaid enrollment and the role of UIOs as providers for AI/AN Medicaid beneficiaries. [Link]
  • New Resource: Medicaid is Changing — Medicaid Work Requirements and the AI/AN Exemption — outlines the work, renewal, and cost-sharing changes taking effect in 2027 and what the AI/AN exemption protects. [Link]

Fiscal Year 2027 Appropriations Status and Updates

On August 8, the Senate passed a continuing resolution (CR)by a vote of 90-6 that would fund the government through December 11. The CR:

  • Prevents implementation of the Office of Management and Budget’s (OMB) proposed grants rule through the duration of the CR; and
  • Extends authorizations of important health, veterans, infrastructure, and other programs for the duration of the CR.

Next Steps: The House returns from recess on August 31 and must act on the Senate’s version before the September 30 funding deadline. NCUIH will continue to work to protect funding for Indian Country.

NCUIH Joins Tribal Leaders and Senate Champions to Celebrate Introduction of the Native Children’s Commission Implementation Act

On July 23, NCUIH’s Board President Robyn Sunday-Allen (Cherokee Nation), who also serves as Chief Executive Officer of the Oklahoma City Indian Clinic (OKCIC), spoke at the congressional briefing launching the Native Children’s Commission Implementation Act, introduced July 14 by Sens. Lisa Murkowski (R-AK) and Brian Schatz (D-HI).

[Read NCUIH’s press release on the event.]

This bi-partisan legislation would address longstanding challenges facing Native children and families across child welfare, education, health care, juvenile justice, housing, workforce development, nutrition, and data systems, and represents one of the most significant investments in Native children and families in a generation.

UIO inclusions in the bill:

  • Tribal Perinatal Workforce Demonstration Grants (Sec. 403): The section establishes a grant program for eligible entities to recruit, train, and retain maternity care providers, behavioral health providers, dietitians, doulas, and other perinatal health workers. Urban Indian organizations are named as eligible entities for the program.
  • HRSA Tribal Advisory Committee (Sec. 401): This new committee, composed of at least 12 members, would be appointed from nominations submitted by Indian Tribes, Tribal organizations, and urban Indian organizations.
  • SAMHSA Tribal Technical Advisory Committee (Sec. 404): Of at least 14 members, two seats are reserved for representatives of “national Tribal organizations or urban Indian organizations” with national expertise in behavioral health.
  • NIH Tribal Health Research Office and Tribal Advisory Committee (Sec. 301): The bill establishes a new Tribal Health Research Office within the Office of the Director of NIH, along with a Tribal Advisory Committee of at least 17 members. Notably, two of those seats are specifically reserved for representatives of urban Indian organizations.
  • Native Infant and Maternal Health Data (Sec. 302): The bill directs CDC to enter into cooperative agreements with Indian Tribes, Tribal organizations, Tribal Epidemiology Centers, Papa Ola Lokahi, and urban Indian organizations to address misclassification and under sampling of Native infant and maternal health data.

[Read NCUIH’s analysis on the bill.]

NCUIH Endorses Bill to Improve Public Health Emergency Preparedness (PHEP) for Indian Health Care Providers

Introduced July 21 by Sen. Warren (D-MA), Sen. Heinrich (D-NM), Rep. Stansbury (D-NM-01), and Rep. Leger Fernández (D-NM-03), the CDC Tribal Public Health Security and Preparedness Act would allow Tribes to apply directly to CDC for Public Health Emergency Preparedness (PHEP) program funds.

  • Authorizes$750 millionfor each fiscal year, 2026 through 2028, for the PHEP program, 5% Tribal set-aside.
  • UIOs are included in several consultation provisions that would ensure they are included in crafting public health plans.

[Read NCUIH’s analysis on the bill.]

NCUIH Submits Comments to CMS on Interim Final Rule on H.R. 1 Implementation

On July 31, NCUIH submitted comments on the CMS interim final rule on H.R. 1 implementation. In its comments, NCUIH encouraged CMS to provide clear guidance and support for implementation of the American Indian and Alaska Native Medicaid provisions, promote collaboration with UIOs, Tribes, and Tribal Organizations, strengthen oversight and data collection efforts, and ensure meaningful engagement with UIOs.

NCUIH Submits Comments to IHS on Additional Special Diabetes Program for Indians Funding

IHS requested feedback on $70 million in additional Special Diabetes Program for Indians (SDPI) funding — $50 million from the Fiscal Year 2026 funding increase and $20 million in one-time unobligated SDPI funding. In its comments, NCUIH encouraged IHS to provide flexibility in the use of funding, promote local decision-making, engage with Tribes and UIOs, and allow sufficient time for feedback.

Comment Opportunity — Due September 5: IHS Health Information Technology Modernization: Roadmap to Cohorts

On August 6, IHS held a Tribal Consultation and Urban Confer session on Health Information Technology (HIT) Modernization: Roadmap to Cohorts. Formation of Cohort 1 for implementing the Patients at the Heart (PATH) electronic health record (EHR) is dependent on funding, but IHS is envisioning two federal sites and one Tribal site.

IHS is seeking responses to: 

  1. What additional information or content would be helpful to determine readiness at your site?
  2. What questions do you have about requirements or level commitment needed to support PATH EHR implementation?
  3. What questions or recommendations do you have regarding the cohort identification process?

Comments are due to IHS by September 5, 2026. 

  1. Email Urban Confer comments to: urbanconfer@ihs.gov

Upcoming Events and Policy Dates

September 1-3: NCUIH UIO Focus Groups — Setting Policy Priorities for 2027 (ncuih.org/events)

  • September 1: Full Ambulatory | 1:00-2:00 p.m. ET; Outpatient and Residential | 3:00-4:00 p.m. ET
  • September 2: Limited Ambulatory | 1:00-2:00 p.m. ET; Outreach and Referral | 3:00-4:00 p.m. ET
  • September 3: Make-Up Session | 1:00-2:00 p.m. ET

September 15-16: IHS Tribal Leaders Diabetes Committee (TLDC) Quarterly Meeting (virtual)

September 15-17: National Congress of American Indians (NCAI) Tribal Impact Days (Washington, D.C.)

September 16: NCUIH Monthly Policy Workgroup and IHS DBH Prep Session for UIOs (virtual)

September 17: NCUIH and IHS DBH Listening Session (virtual – register at ncuih.org/events) | 1:00-2:00 p.m. ET

Current Funding Opportunities

Visit the NCUIH Website to apply and explore the Full List of Opportunities.

HHS Administration for Native Americans (ANA): AI3 Action Institute — Artificial Intelligence for American Indians (AI3) 

  • Urban Indian Organizations are eligible.
  • The award is $3,500,000 total (single award).
  • The application deadline is August 27, 2026.

HHS ANA: National Center for Native Training and Technical Assistance Cooperative Agreement 

  • Urban Indian Organizations are eligible.
  • The award is $3,100,000 total (single award) over a 3-year project period.
  • The application deadline is August 27, 2026.

HHS ANA: Economic Advancement Grants for Local Empowerment (EAGLE) 

  • Urban Indian Organizations are eligible.
  • The award is up to $900,000 per project over a 3-year project period.
  • The application deadline is August 27, 2026.

Indian Health Service Addressing Dementia in Tribal and Urban Indian Communities: CAReS Program 

  • Urban Indian Organizations are eligible.
  • Option A offers up to $750,000 per year for five years to one national awardee to expand dementia care through mini-projects, training, and technical assistance.
  • Option B offers up to $300,000 per year for five years to one national awardee to develop a caregiver support and training center.
  • The application deadline is September 4, 2026.

Indian Health Service Fiscal Year 2026 Urban Emergency Fund (UEF) 

  • The purpose of this fund is to help Urban Indian Organizations address costs associated with one-time, non-recurring emergencies and disaster relief efforts.
  • The award is a limited discretionary fund, with up to $250,000 available.
  • The application deadline is as soon as reasonably practicable after the emergency occurs.

 

About NCUIH

The National Council of Urban Indian Health (NCUIH) is a national representative for the 41 Urban Indian Organizations contracting with the Indian Health Service under the Indian Health Care Improvement Act. NCUIH is devoted to the support and development of high quality and accessible health and public health services for American Indian and Alaska Native people living in urban areas.

NCUIH respects and supports Tribal sovereignty and the unique government-to-government relationship between our Tribal Nations and the United States. NCUIH works to support those federal laws, policies, and procedures that respect and uplift Tribal sovereignty and the government-to-government relationship. NCUIH does not support any federal law, policy, or procedure that infringes upon or in any way diminishes Tribal sovereignty or the government-to-government relationship.

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NCUIH Releases Updated Resource on the Impact of Medicaid on Health Care for American Indian and Alaska Native People

Washington, DC, August 14, 2026 — The National Council of Urban Indian Health (NCUIH) has released an updated resource, Overview of the Impact of Medicaid on Health Care for American Indian and Alaska Native People, detailing Medicaid’s role in American Indian, Alaska Native, and Urban Indian health care and the changes to the program taking effect under the One Big Beautiful Bill Act (OBBBA). This report updates NCUIH’s March 2025 Medicaid resource with new 2023 enrollment data and an overview of the OBBBA exemption protecting AI/AN beneficiaries. For a quick-reference summary of the OBBBA changes, see NCUIH’s related resource, Medicaid is Changing. 

Medicaid Is Critical to Health Care for American Indian and Alaska Native People 

The federal government has a trust responsibility to provide federal health services to maintain and improve the health of AI/AN and Urban Indian people. Medicaid, a joint federal-state program, is essential to fulfilling that responsibility for eligible AI/AN beneficiaries. In 2023: 

  • 2.7 million AI/AN people were enrolled in Medicaid nationwide. 
  • 24% of AI/AN adults ages 18-64 were enrolled in Medicaid. 
  • 23% of AI/AN adults over 64 were enrolled in Medicaid. 
  • 49% of AI/AN children ages 0-18 were enrolled in Medicaid. 
Urban Indian Organizations Are Necessary Medicaid Providers 

Urban Indian Organizations (UIOs) are a critical access point for AI/AN Medicaid beneficiaries, particularly given that the majority of the AI/AN population lives in urban areas. 

  • 1.9 million AI/AN people were enrolled in Medicaid in states with UIOs. 
  • 59% of AI/AN people receiving care at UIOs were Medicaid beneficiaries. 
  • 8 out of the top 10 states with the largest number of AI/AN Medicaid beneficiaries are served by UIOs, including California, Oklahoma, Arizona, Texas, New Mexico, New York, Washington, and Illinois. 
Medicaid Is Changing Under the One Big Beautiful Bill Act 

Starting in 2027, most Medicaid enrollees will face new work requirements, more frequent eligibility redeterminations, and new cost-sharing charges under the OBBBA. Indians, Urban Indians, California Indians, and individuals otherwise determined eligible for the Indian Health Service are exempt from these changes: 

  • No Work Requirement: No work, school, or volunteer hour requirement to keep Medicaid. 
  • 12-Month Renewal: The current 12-month renewal cadence is retained, rather than the new 6-month redetermination cycle for expansion adults. 
  • Cost-Sharing Protection: No new cost sharing for services at an Indian health care provider or through qualifying referred care. 

Note: This protection applies specifically to care received at an Indian health care provider or through a qualifying referral from one. It does not extend to cost sharing for Medicaid services received elsewhere. 

Some states have already begun implementing these changes ahead of the national deadline. UIOs and patients should confirm their state’s specific timeline with their state Medicaid agency. 

Call to Action 

Primary Ask: Ensure Proper Implementation of the AI/AN and Urban Indian Medicaid Work Requirement Exemption 

States may not yet have sufficient information to reliably identify everyone who qualifies for the AI/AN exemption before outreach occurs, creating a risk of misidentification or confusing notices. HHS and CMS should issue binding guidance so states apply the AI/AN exemption automatically, ensuring implementation does not create new barriers for AI/AN and Urban Indian people. 

Ongoing Priority: Preserve and Maintain All Existing Medicaid Resources for the Indian Health System 

Cuts to Medicaid place a heavier burden on states and can force Indian health care providers to reduce essential services. Preserving Medicaid resources is critical to ensuring AI/AN and Urban Indian beneficiaries can access necessary care and to fulfilling the trust responsibility.

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NCUIH Releases New Resource on Medicaid Work Requirements and the AI/AN Exemption

Washington, DC, August 14, 2026 — The National Council of Urban Indian Health (NCUIH) has released a new resource, Medicaid is Changing, outlining upcoming changes to Medicaid under the One Big Beautiful Bill Act (OBBBA) and the protections in place for American Indian, Alaska Native, and Urban Indian beneficiaries. 

Starting in 2027, most Medicaid enrollees will face new work requirements, more frequent eligibility redeterminations, and new cost-sharing charges for some expansion adults. Indians, Urban Indians, California Indians, and individuals otherwise determined eligible for the Indian Health Service are exempt from these changes.

As of August 2026, some states have already begun implementing these changes ahead of the national deadline. UIOs and patients should confirm their state’s specific timeline with their state Medicaid agency.

What Is the AI/AN and Urban Indian Medicaid Exemption?

Indians, Urban Indians, California Indians, and individuals otherwise determined eligible for the Indian Health Service are exempt from the OBBBA’s new Medicaid work requirements, six-month redetermination cycle, and cost-sharing changes. This exemption is written into the statute itself.

What the Exemption Protects
  • No Work Requirement: No work, school, or volunteer hour requirement to keep Medicaid. (OBBBA § 71119(a))
  • 12-Month Renewal: The current 12-month renewal cadence is retained, rather than the new 6-month redetermination cycle. (OBBBA § 71107)
  • Cost-Sharing Protection: No new cost sharing for services at an Indian health care provider or through qualifying referred care. (ARRA § 5006, 42 U.S.C. § 1396o(j))
    • Note: This protection applies specifically to care received at an Indian health care provider or through a qualifying referral from one. It does not extend to cost sharing for Medicaid services received elsewhere.
Call to Action
Primary Ask: Ensure Proper Implementation of the AI/AN and Urban Indian Medicaid Work Requirement Exemption

States may not yet have sufficient information to reliably identify everyone who qualifies for the AI/AN exemption before outreach occurs, creating a risk of misidentification or confusing notices. HHS and CMS should issue binding guidance so states apply the AI/AN exemption automatically, ensuring implementation does not create new barriers for AI/AN and Urban Indian people.

Ongoing Priority: Preserve and Maintain All Existing Medicaid Resources for the Indian Health System

Cuts to Medicaid place a heavier burden on states and can force Indian health care providers to reduce essential services. Preserving Medicaid resources is critical to ensuring AI/AN and Urban Indian beneficiaries can access necessary care and to fulfilling the trust responsibility.

Frequently Asked Questions

Do American Indian and Alaska Native people have to comply with the new Medicaid work requirements?

No. AI/AN and Urban Indian Medicaid beneficiaries are statutorily exempt from the OBBBA’s community engagement and work requirements.

Will AI/AN Medicaid beneficiaries have their eligibility checked every six months?

No. The exemption preserves the current 12-month Medicaid renewal cycle for AI/AN and Urban Indian beneficiaries. 

Will AI/AN people face new Medicaid cost-sharing charges?

No. Federal law already prohibits cost sharing for services furnished to Indians through Indian health programs, and this protection remains in place under the OBBBA.

When do the OBBBA Medicaid changes take effect?

As of August 2026, the new work requirements and six-month redeterminations are already in effect in Nebraska and Montana, with Arkansas notifying enrollees ahead of a January 1, 2027 compliance start and Iowa following in December 2026. All other states must comply by January 1, 2027.

Who is covered by the AI/AN and Urban Indian Medicaid exemption?

Indians, Urban Indians, California Indians, and individuals otherwise determined eligible for services from the Indian Health Service.

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NCUIH Endorses Bicameral Bill to Improve Public Health Emergency Preparedness for Indian Health Care Providers

On July 21, 2026, Senator Elizabeth Warren (D-Mass.), Senator Martin Heinrich (D-N.M.), Representative Melanie Stansbury (D-NM-01), Representative Teresa Leger Fernandez (D-NM-03) introduced the Centers for Disease Control and Prevention (CDC) Tribal Public Health Security and Preparedness Act (S.5056/ H.R.9820). The bill would allow Tribes to apply directly to the Centers for Disease Control and Prevention (CDC) for Public Health Emergency Preparedness (PHEP) program funds. Currently, only states and certain local entities may apply for PHEP funds to respond to public health emergencies. The bill authorizes $750 million for each of fiscal years 2026 through 2028 for the PHEP program 5% tribal set-aside of the total CDC PHEP funds.  Additionally, urban Indian organizations (UIOs) are included in several important consultation provisions in the bill that would ensure they are included in crafting public health plans.

“The National Council of Urban Indian Health (NCUIH) is pleased to endorse the CDC Tribal Public Health Security and Preparedness Act which provides Tribes access to Public Health Emergency Preparedness (PHEP) program funds and includes urban Indian organization input on the development of public health plans. This bill’s equitable access to critical preparedness funds will ensure Indian Country will be better prepared to respond to future public health emergencies.” – Francys Crevier (Algonquin), CEO, NCUIH.

The CDC Tribal Public Health Security and Preparedness Act is cosponsored by U.S. Senators Tina Smith (D-Minn.), Bernie Sanders (I-Vt.), Amy Klobuchar (D-Minn.), Tammy Baldwin (D-Ill.), Cory Booker (D-N.J.), and Ron Wyden (D-Ore.).

The bill has been endorsed by leading Native American advocacy groups— including the National Congress of American Indians, National Indian Health Board, and NCUIH. It currently awaits consideration.

Resources
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Senate Confirms Mark Cruz as Director of the Indian Health Service

FOR IMMEDIATE RELEASE

WASHINGTON, D.C. (August 7, 2026)– The National Council of Urban Indian Health (NCUIH) applauds the U.S. Senate’s confirmation of Mark Cruz (Klamath Tribes) as Director of the Indian Health Service (IHS). The Senate confirmed Mr. Cruz today, following a favorable vote by the Senate Committee on Indian Affairs (SCIA) on July 22, 2026, and a nomination hearing before SCIA on June 24, 2026.

Director Cruz’s confirmation ends more than a year without a Senate-confirmed IHS Director, which began when former Director Roselyn Tso (Navajo) resigned at the start of the current administration. NCUIH previously stressed the importance of appointing a permanent IHS Director and called for the elevation of the role to Assistant Secretary. IHS Chief of Staff Clayton Fulton has served in an acting capacity since December 2025.

As IHS Director, Director Cruz will oversee a nationwide health care delivery system serving approximately 2.8 million American Indians and Alaska Natives through the Indian health system. Mr. Cruz will continue to jointly serve as Senior Advisor to HHS Secretary Robert F. Kennedy Jr., where he is one of the highest-ranking Native officials within the Department.

During his confirmation hearing, Director Cruz pledged his commitment to the work ahead, stating: “Tribal leaders and Congress can count on me to engage early, listen carefully, and be transparent. I am realistic about the challenges but optimistic about what we can achieve together. With strong federal, Tribal, and urban Indian health partners, outcomes will continue to improve.”

Director Cruz’s confirmation drew broad support from Indian Country. The National Congress of American Indians (NCAI) applauded the nomination and called for the Senate’s swift confirmation, citing Cruz’s advocacy for historic increases in IHS appropriations, his work mobilizing more than 70 Public Health Service officers to IHS facilities, and his efforts to reduce barriers for Tribal Nations developing culturally grounded health responses. The committee received more than 40 letters from Tribes and Tribal organizations in support of his confirmation.

NCUIH will continue to engage with Director Cruz and IHS on priorities including full and stable funding for IHS including urban Indian health, Medicaid parity for UIOs, and investments in Native behavioral health programs.

NCUIH Contact: Meredith Raimondi, Senior Vice President of Policy and Communications, mraimondi@ncuih.org

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When the Data Gets It Wrong: Racial Misclassification of American Indian and Alaska Native Pregnant and Postpartum People

Authors: Navneet Kaur and Nahla Holland

A citizen of a Tribal Nation goes to their primary care provider. During the clinic visit the nurse assumes the patient’s race and ethnicity as Black and records that in their chart. The same patient goes to a specialist, they select both ‘Black’ and ‘American Indian or Alaska Native’ when filling out their paperwork. However, the specialists’ electronic health record (EHR) changes the patient’s race to a non-specific ‘multiracial’ category, hiding the patients’ selected race/ethnicity.

Self Identification Identified at Primary Care Provider Identified Specialists’ EHR
Cartoon Image of a Woman Black & Citizen of Tribal Nation
Black or African American
Black or African American AND American Indian or Alaska Native
Multiracial

Often American Indian and Alaska Native people are indicated in official health, government, or other records as a race/ethnicity that they themselves did not choose and/or may not identify with (National Council of Urban Indian Health, 2019; Rusk et al., 2025). This can be due to someone else assuming an individual’s race/ethnicity, form questions not allowing for multiple races/ethnicities to be selected or even excluding American Indian and Alaska Native as an available race/ethnicity category to select altogether. This incorrect identification is called racial misclassification. Even when patients can identify their own race/ethnicity, standard data practices and antiquated classification systems will often automatically group American Indian and Alaska Native people into non-specific categories such as ‘other,’ ‘multiracial,’ ‘Hispanic,’ or entirely suppress any American Indian and Alaska Native data due to small population size (Agency for Healthcare Research and Quality, 2012; Haozous et al., 2014).

Impact of Racial Misclassification on American Indian and Alaska Native people

Public health surveillance data and vital statistics cannot accurately reflect the communities they are supposed to represent when racial misclassification occurs. Racial misclassification can be amplified in urban settings, where Native people may be a less visible population to others (Arias et al, 2016). This contributes to numerous problems and exacerbates the perception of American Indian and Alaska Native people not being a part of the current population and reduces the availability of data for any needed support or resources.

  • Misclassification causes underestimates of population counts, inaccurate health trends and other important statistics. This weakens epidemiological evidence and the understanding of disparities, improvements, and strengths within our Native communities (Arias et al., 2016; Bertolli et al., 2007; Sugarman et al., 1993).
  • Public health surveillance data and population counts are used by policy makers, funders, and other stakeholders to monitor trends, identify public health needs, and allocate resources. Underestimates due to racial misclassification limits the visibility of health crises, the availability of resources, and the overall ability to respond to urgent health needs in our communities (Bertolli et al., 2007 Burhansstipanov & Satter, 2000).
Racial Misclassification and Maternal Mortality Review Committees (MMRCs)

State or local Maternal Mortality Review Committees (MMRCs) are tasked with identifying and understanding pregnancy-related deaths within their area and then sharing accurate cumulative data to establish evidence of demonstrated needs and providing recommendations to improve pregnancy and postpartum health outcomes (Centers for Disease Control and Prevention, 2024b). When the race and ethnicity records that MMRCs receive or fill out themselves are misclassified, it further erases data for American Indian and Alaska Native communities to properly identify, understand, and respond to critical pregnancy and postpartum health factors (MacDorman et al., 2021).

Racial misclassification decreases the visibility of American Indian and Alaska Native pregnancy-related deaths and makes it harder to address and determine useful recommendations (MacDorman et al., 2021). Previously, the Centers for Disease Control and Prevention (CDC) used MMRC data to examine American Indian and Alaska Native pregnancy-related deaths in 36 U.S. states from 2017-2019 (Trost et al., 2022). When racial classifications allowed for broader representation of people identified as American Indian and Alaska Native, the number of American Indian and Alaska Native people nearly doubled in size. However, this adjustment for previously misclassified American Indian and Alaska Native identified individuals could still exclude even more American Indian and Alaska Native people that their MMRC’s overlooked as American Indian and Alaska Native (Trost et al., 2022).

Racial misclassification chips away at the work MMRCs do:

  • MMRC members can not properly review and understand an individual’s story that contributed to their death when records are racially misclassified.
    • This allows for cultural factors within Tribal or Urban communities to be overlooked.
    • Native people experience discrimination within the health care system. MMRCs in 2022, determined that 50 percent of identified American Indian and Alaska Native pregnancy-related deaths indicated discrimination as a probable or determined contributing factor to death (Centers for Disease Control and Prevention, 2026). Racism and discrimination towards Native people may not be considered as a contributing factor if someone is racially misclassified in their records.
  • If MMRCs do not know that they are reviewing cases of American Indian and Alaska Native people they cannot inform Tribal or urban Indian health leaders of pregnancy-related morbidity and mortality concerns that are impacting their communities.
  • Underestimates of American Indian and Alaska Native pregnancy-related deaths undermines the need for American Indian and Alaska Native community or specific Tribal representatives on MMRCs to provide necessary context for reviews or the needs for a Tribal MMRC altogether. Tribally-Led MMRCs will be vital committees capable of providing culturally relevant review that will foster partnerships with Tribal and urban Indian health leaders to develop necessary recommendations that address all contributing factors within Indian Country to promote pregnancy and postpartum health. This misclassification may lead state MMRCs to the misconception that there is not a ‘sufficient’ number, or any number, of American Indian and Alaska Native pregnancy-related death cases to emphasize the need for American Indian and Alaska Native representation on the review committee.

Racial misclassification contributes to inequities in pregnancy and postpartum health that comes from failure to recognize systemic barriers that impact American Indian and Alaska Native people (Centers for Disease Control and Prevention, 2024a; Haozous et al., 2014). If racial misclassification persists in records, MMRCs will overlook or misidentify risk factors, share inaccurate pregnancy-related death trends, and develop recommendations that will not address the needs of American Indian and Alaska Native people.

Best Practices to Avoid Racial Misclassification
  • To address systemic biases, there should be self-identification (when possible) in a way a person can record their race by themselves and not by any appearance or assumptions (National Council of Urban Indian Health, 2019).
    • Organizations should always include American Indian and Alaska Native as an option and allow for multi-select when filling out race and ethnicity options.
    • When sharing trends and data for race/ethnicities, report trends for American Indian and Alaska Native populations using American Indian and Alaska Native alone or in combination with one or more races/ethnicities.
  • Anyone filling out forms for race/ethnicity for someone else, such as MMRC members, intake staff, or funeral directors and coroners should ask directly to the individual or the individual’s family how they should fill out race/ethnicity on forms. Do not rely on other records for correct race/ethnicity information.
    • It is important to note that being American Indian and Alaska Native is a political status in the United States, not just a race/ethnicity categorization. This underscores the importance of always asking an individual or an individual’s family how they identify and include if they have any Tribal affiliations.
    • Do not ask people to prove race/ethnicity.
    • Allow individuals to correct race/ethnicity information on their own records, or their decedent’s records, without charge or other complicated steps.
  • Train health care staff, statisticians, funeral directors, and others on how to properly request and record races/ethnicities, the complexities and importance of American Indian and Alaska Native identity, why to avoid biases, and why such errors harm American Indian and Alaska Native communities (Haozous et al., 2014).
  • Collaborate with Tribes, Tribal Epidemiology Centers, and Urban Indian Organizations (UIOs) as data custodians to ensure accurate race/ethnicity standards for forms, improve data quality, support interpretation of American Indian and Alaska Native data, and the development of culturally relevant recommendations.
  • Apply data linkages with records from one data source to another data source like Indian Health Service (IHS) records where an individual would have been indicated as an American Indian or Alaska Native person. This can correct racial misclassification that occurs on death certificates or in other forms (BigBack et al., 2015; Gartner et al., 2023).

Racial misclassification is not a simple data issue. It endangers lives by weakening the validity of health trends for American Indian and Alaska Native people. Addressing racial misclassification will improve the evidence needed to identify and communicate with policymakers and other stakeholders about the needs and strengths within our communities. With those improvements made in American Indian and Alaska Native health data, it will support improved investments and resources to promote wellness for our American Indian and Alaska Native communities.

For more resources on racial misclassification, visit: ncuih.org/misclassification

Recommended Citation: 

National Council of Urban Indian Health. (2026, August 5). When the data gets it wrong: Racial misclassification of American Indian and Alaska Native pregnant and postpartum people. https://ncuih.org/2026/08/05/when-the-data-gets-it-wrong-racial-misclassification-of-american-indian-and-alaska-native-pregnant-and-postpartum-people/

Works Referenced:

Agency for Healthcare Research and Quality. (2012). Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement-3. Defining Categorization Needs for Race and Ethnicity Data. https://www.ahrq.gov/research/findings/final-reports/iomracereport/reldata3.html

Arias, E., Heron, M., National Center for Health Statistics, Hakes, J., & US Census Bureau (2016). The Validity of Race and Hispanic-origin Reporting on Death Certificates in the United States: An Update. Vital and health statistics. Series 2, Data evaluation and methods research, (172), 1–21. https://pubmed.ncbi.nlm.nih.gov/28436642/

Bertolli, J., Lee, L.M., & Sullivan, P.S. (2007). Racial Misidentification of American Indians/Alaska Natives in the HIV/AIDS Reporting Systems of Five States and One Urban Health Jurisdiction, U.S., 1984–2002. Public Health Reports, 122, 382 – 392. https://journals.sagepub.com/doi/pdf/10.1177/003335490712200312

Bigback, K. M., Hoopes, M., Dankovchik, J., Knaster, E., Warren-Mears, V., Joshi, S., & Weiser, T. (2015). Using Record Linkage to Improve Race Data Quality for American Indians and Alaska Natives in Two Pacific Northwest State Hospital Discharge Databases. Health services research50 Suppl 1(Suppl 1), 1390–1402. https://doi.org/10.1111/1475-6773.12331

Burhansstipanov, L., & Satter, D. E. (2000). Office of Management and Budget racial categories and implications for American Indians and Alaska Natives. American journal of public health90(11), 1720–1723. https://doi.org/10.2105/ajph.90.11.1720

Centers for Disease Control and Prevention. (2024a, May 15). Disparities and resilience among American Indian and Alaska Native women who are pregnant or postpartum | hear her campaign | CDC. CDC Hear Her Campaign. https://www.cdc.gov/hearher/aian/disparities.html

Centers for Disease Control and Prevention. (2024b, May 15). Maternal Mortality Review Committee Logic Model. https://www.cdc.gov/maternal-mortality/php/mmrc-logic-model/index.html

Centers for Disease Control and Prevention. (2026, April 20). Pregnancy-related deaths among American Indian or Alaska native women: Data from maternal mortality review committees | maternal mortality prevention | CDC. Maternal Mortality Prevention. https://www.cdc.gov/maternal-mortality/php/data-research/mmrc/aian.html

Gartner, D. R., Maples, C., Nash, M., & Howard-Bobiwash, H. (2023). Misracialization of Indigenous people in population health and mortality studies: a scoping review to establish promising practices. Epidemiologic reviews45(1), 63–81. https://doi.org/10.1093/epirev/mxad001

Haozous, E. A., Strickland, C. J., Palacios, J. F., & G. Teshia, A. (2014). Blood politics, ethnic identity, and racial misclassification among American Indians and Alaska Natives. Journal of Health Disparities Research and Practice, 7(1), 5–28. https://onlinelibrary.wiley.com/doi/10.1155/2014/321604

MacDorman, M. F., Declercq, E., & Thoma, M. E. (2021). Maternal mortality in the United States: Changes in coding, misclassification, and data quality. Birth, 48(1), 7–14. https://doi.org/10.2105/AJPH.2021.306375

National Council of Urban Indian Health. (2019). Racial Misclassification of American Indian and Alaska Natives on Death Certificates: The Role of Funeral Directors in Policy and Prevention. National Council of Urban Indian Health | Racial Misclassification. https://ncuih.org/wp-content/uploads/2021/08/Final_Racial_Misclassification_prepub.pdf

Rusk, A. M., Chamberlain, A. M., Felzer, J., Bui, Y., Patten, C. A., Destephano, C. C., Rank, M. A., Benzo, R. P., & Kennedy, C. C. (2025). Racial misclassification of American Indian and Alaska native people in the Electronic Medical Record: An unexpected hurdle in a retrospective medical record cohort study. Journal of Medical Internet Research, 27. https://doi.org/10.2196/73086

Sugarman, J. R., Soderberg, R., Gordon, J. E., & Rivara, F. P. (1993). Racial misclassification of American Indians: Its effect on injury rates in Oregon, 1989 through 1990. American Journal of Public Health, 83(5), 681–684. https://10.2105/ajph.83.5.681

Trost, S., Beauregard, J., Chandra, G., Njie, F., Harvey, A., Berry, J., & Goodman, D. A. (2022). Pregnancy-Related Deaths Among American Indian or Alaska Native Persons: Data from Maternal Mortality Review Committees in 36 US States, 2017–2019. Centers for Disease Control and Prevention: Reproductive Health. https://web.archive.org/web/20230420211807/https://www.cdc.gov/reproductivehealth/maternal-mortality/erase-mm/data-mmrc-aian.html

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