Tag Archive for: MMRCMH

When the Data Gets It Wrong: Racial Misclassification of American Indian and Alaska Native Pregnant and Postpartum People

Authors: Navneet Kaur and Nahla Holland

A citizen of a Tribal Nation goes to their primary care provider. During the clinic visit the nurse assumes the patient’s race and ethnicity as Black and records that in their chart. The same patient goes to a specialist, they select both ‘Black’ and ‘American Indian or Alaska Native’ when filling out their paperwork. However, the specialists’ electronic health record (EHR) changes the patient’s race to a non-specific ‘multiracial’ category, hiding the patients’ selected race/ethnicity.

Self Identification Identified at Primary Care Provider Identified Specialists’ EHR
Cartoon Image of a Woman Black & Citizen of Tribal Nation
Black or African American
Black or African American AND American Indian or Alaska Native
Multiracial

Often American Indian and Alaska Native people are indicated in official health, government, or other records as a race/ethnicity that they themselves did not choose and/or may not identify with (National Council of Urban Indian Health, 2019; Rusk et al., 2025). This can be due to someone else assuming an individual’s race/ethnicity, form questions not allowing for multiple races/ethnicities to be selected or even excluding American Indian and Alaska Native as an available race/ethnicity category to select altogether. This incorrect identification is called racial misclassification. Even when patients can identify their own race/ethnicity, standard data practices and antiquated classification systems will often automatically group American Indian and Alaska Native people into non-specific categories such as ‘other,’ ‘multiracial,’ ‘Hispanic,’ or entirely suppress any American Indian and Alaska Native data due to small population size (Agency for Healthcare Research and Quality, 2012; Haozous et al., 2014).

Impact of Racial Misclassification on American Indian and Alaska Native people

Public health surveillance data and vital statistics cannot accurately reflect the communities they are supposed to represent when racial misclassification occurs. Racial misclassification can be amplified in urban settings, where Native people may be a less visible population to others (Arias et al, 2016). This contributes to numerous problems and exacerbates the perception of American Indian and Alaska Native people not being a part of the current population and reduces the availability of data for any needed support or resources.

  • Misclassification causes underestimates of population counts, inaccurate health trends and other important statistics. This weakens epidemiological evidence and the understanding of disparities, improvements, and strengths within our Native communities (Arias et al., 2016; Bertolli et al., 2007; Sugarman et al., 1993).
  • Public health surveillance data and population counts are used by policy makers, funders, and other stakeholders to monitor trends, identify public health needs, and allocate resources. Underestimates due to racial misclassification limits the visibility of health crises, the availability of resources, and the overall ability to respond to urgent health needs in our communities (Bertolli et al., 2007 Burhansstipanov & Satter, 2000).
Racial Misclassification and Maternal Mortality Review Committees (MMRCs)

State or local Maternal Mortality Review Committees (MMRCs) are tasked with identifying and understanding pregnancy-related deaths within their area and then sharing accurate cumulative data to establish evidence of demonstrated needs and providing recommendations to improve pregnancy and postpartum health outcomes (Centers for Disease Control and Prevention, 2024b). When the race and ethnicity records that MMRCs receive or fill out themselves are misclassified, it further erases data for American Indian and Alaska Native communities to properly identify, understand, and respond to critical pregnancy and postpartum health factors (MacDorman et al., 2021).

Racial misclassification decreases the visibility of American Indian and Alaska Native pregnancy-related deaths and makes it harder to address and determine useful recommendations (MacDorman et al., 2021). Previously, the Centers for Disease Control and Prevention (CDC) used MMRC data to examine American Indian and Alaska Native pregnancy-related deaths in 36 U.S. states from 2017-2019 (Trost et al., 2022). When racial classifications allowed for broader representation of people identified as American Indian and Alaska Native, the number of American Indian and Alaska Native people nearly doubled in size. However, this adjustment for previously misclassified American Indian and Alaska Native identified individuals could still exclude even more American Indian and Alaska Native people that their MMRC’s overlooked as American Indian and Alaska Native (Trost et al., 2022).

Racial misclassification chips away at the work MMRCs do:

  • MMRC members can not properly review and understand an individual’s story that contributed to their death when records are racially misclassified.
    • This allows for cultural factors within Tribal or Urban communities to be overlooked.
    • Native people experience discrimination within the health care system. MMRCs in 2022, determined that 50 percent of identified American Indian and Alaska Native pregnancy-related deaths indicated discrimination as a probable or determined contributing factor to death (Centers for Disease Control and Prevention, 2026). Racism and discrimination towards Native people may not be considered as a contributing factor if someone is racially misclassified in their records.
  • If MMRCs do not know that they are reviewing cases of American Indian and Alaska Native people they cannot inform Tribal or urban Indian health leaders of pregnancy-related morbidity and mortality concerns that are impacting their communities.
  • Underestimates of American Indian and Alaska Native pregnancy-related deaths undermines the need for American Indian and Alaska Native community or specific Tribal representatives on MMRCs to provide necessary context for reviews or the needs for a Tribal MMRC altogether. Tribally-Led MMRCs will be vital committees capable of providing culturally relevant review that will foster partnerships with Tribal and urban Indian health leaders to develop necessary recommendations that address all contributing factors within Indian Country to promote pregnancy and postpartum health. This misclassification may lead state MMRCs to the misconception that there is not a ‘sufficient’ number, or any number, of American Indian and Alaska Native pregnancy-related death cases to emphasize the need for American Indian and Alaska Native representation on the review committee.

Racial misclassification contributes to inequities in pregnancy and postpartum health that comes from failure to recognize systemic barriers that impact American Indian and Alaska Native people (Centers for Disease Control and Prevention, 2024a; Haozous et al., 2014). If racial misclassification persists in records, MMRCs will overlook or misidentify risk factors, share inaccurate pregnancy-related death trends, and develop recommendations that will not address the needs of American Indian and Alaska Native people.

Best Practices to Avoid Racial Misclassification
  • To address systemic biases, there should be self-identification (when possible) in a way a person can record their race by themselves and not by any appearance or assumptions (National Council of Urban Indian Health, 2019).
    • Organizations should always include American Indian and Alaska Native as an option and allow for multi-select when filling out race and ethnicity options.
    • When sharing trends and data for race/ethnicities, report trends for American Indian and Alaska Native populations using American Indian and Alaska Native alone or in combination with one or more races/ethnicities.
  • Anyone filling out forms for race/ethnicity for someone else, such as MMRC members, intake staff, or funeral directors and coroners should ask directly to the individual or the individual’s family how they should fill out race/ethnicity on forms. Do not rely on other records for correct race/ethnicity information.
    • It is important to note that being American Indian and Alaska Native is a political status in the United States, not just a race/ethnicity categorization. This underscores the importance of always asking an individual or an individual’s family how they identify and include if they have any Tribal affiliations.
    • Do not ask people to prove race/ethnicity.
    • Allow individuals to correct race/ethnicity information on their own records, or their decedent’s records, without charge or other complicated steps.
  • Train health care staff, statisticians, funeral directors, and others on how to properly request and record races/ethnicities, the complexities and importance of American Indian and Alaska Native identity, why to avoid biases, and why such errors harm American Indian and Alaska Native communities (Haozous et al., 2014).
  • Collaborate with Tribes, Tribal Epidemiology Centers, and Urban Indian Organizations (UIOs) as data custodians to ensure accurate race/ethnicity standards for forms, improve data quality, support interpretation of American Indian and Alaska Native data, and the development of culturally relevant recommendations.
  • Apply data linkages with records from one data source to another data source like Indian Health Service (IHS) records where an individual would have been indicated as an American Indian or Alaska Native person. This can correct racial misclassification that occurs on death certificates or in other forms (BigBack et al., 2015; Gartner et al., 2023).

Racial misclassification is not a simple data issue. It endangers lives by weakening the validity of health trends for American Indian and Alaska Native people. Addressing racial misclassification will improve the evidence needed to identify and communicate with policymakers and other stakeholders about the needs and strengths within our communities. With those improvements made in American Indian and Alaska Native health data, it will support improved investments and resources to promote wellness for our American Indian and Alaska Native communities.

For more resources on racial misclassification, visit: ncuih.org/misclassification

Recommended Citation: 

National Council of Urban Indian Health. (2026, August 5). When the data gets it wrong: Racial misclassification of American Indian and Alaska Native pregnant and postpartum people. https://ncuih.org/2026/08/05/when-the-data-gets-it-wrong-racial-misclassification-of-american-indian-and-alaska-native-pregnant-and-postpartum-people/

Works Referenced:

Agency for Healthcare Research and Quality. (2012). Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement-3. Defining Categorization Needs for Race and Ethnicity Data. https://www.ahrq.gov/research/findings/final-reports/iomracereport/reldata3.html

Arias, E., Heron, M., National Center for Health Statistics, Hakes, J., & US Census Bureau (2016). The Validity of Race and Hispanic-origin Reporting on Death Certificates in the United States: An Update. Vital and health statistics. Series 2, Data evaluation and methods research, (172), 1–21. https://pubmed.ncbi.nlm.nih.gov/28436642/

Bertolli, J., Lee, L.M., & Sullivan, P.S. (2007). Racial Misidentification of American Indians/Alaska Natives in the HIV/AIDS Reporting Systems of Five States and One Urban Health Jurisdiction, U.S., 1984–2002. Public Health Reports, 122, 382 – 392. https://journals.sagepub.com/doi/pdf/10.1177/003335490712200312

Bigback, K. M., Hoopes, M., Dankovchik, J., Knaster, E., Warren-Mears, V., Joshi, S., & Weiser, T. (2015). Using Record Linkage to Improve Race Data Quality for American Indians and Alaska Natives in Two Pacific Northwest State Hospital Discharge Databases. Health services research50 Suppl 1(Suppl 1), 1390–1402. https://doi.org/10.1111/1475-6773.12331

Burhansstipanov, L., & Satter, D. E. (2000). Office of Management and Budget racial categories and implications for American Indians and Alaska Natives. American journal of public health90(11), 1720–1723. https://doi.org/10.2105/ajph.90.11.1720

Centers for Disease Control and Prevention. (2024a, May 15). Disparities and resilience among American Indian and Alaska Native women who are pregnant or postpartum | hear her campaign | CDC. CDC Hear Her Campaign. https://www.cdc.gov/hearher/aian/disparities.html

Centers for Disease Control and Prevention. (2024b, May 15). Maternal Mortality Review Committee Logic Model. https://www.cdc.gov/maternal-mortality/php/mmrc-logic-model/index.html

Centers for Disease Control and Prevention. (2026, April 20). Pregnancy-related deaths among American Indian or Alaska native women: Data from maternal mortality review committees | maternal mortality prevention | CDC. Maternal Mortality Prevention. https://www.cdc.gov/maternal-mortality/php/data-research/mmrc/aian.html

Gartner, D. R., Maples, C., Nash, M., & Howard-Bobiwash, H. (2023). Misracialization of Indigenous people in population health and mortality studies: a scoping review to establish promising practices. Epidemiologic reviews45(1), 63–81. https://doi.org/10.1093/epirev/mxad001

Haozous, E. A., Strickland, C. J., Palacios, J. F., & G. Teshia, A. (2014). Blood politics, ethnic identity, and racial misclassification among American Indians and Alaska Natives. Journal of Health Disparities Research and Practice, 7(1), 5–28. https://onlinelibrary.wiley.com/doi/10.1155/2014/321604

MacDorman, M. F., Declercq, E., & Thoma, M. E. (2021). Maternal mortality in the United States: Changes in coding, misclassification, and data quality. Birth, 48(1), 7–14. https://doi.org/10.2105/AJPH.2021.306375

National Council of Urban Indian Health. (2019). Racial Misclassification of American Indian and Alaska Natives on Death Certificates: The Role of Funeral Directors in Policy and Prevention. National Council of Urban Indian Health | Racial Misclassification. https://ncuih.org/wp-content/uploads/2021/08/Final_Racial_Misclassification_prepub.pdf

Rusk, A. M., Chamberlain, A. M., Felzer, J., Bui, Y., Patten, C. A., Destephano, C. C., Rank, M. A., Benzo, R. P., & Kennedy, C. C. (2025). Racial misclassification of American Indian and Alaska native people in the Electronic Medical Record: An unexpected hurdle in a retrospective medical record cohort study. Journal of Medical Internet Research, 27. https://doi.org/10.2196/73086

Sugarman, J. R., Soderberg, R., Gordon, J. E., & Rivara, F. P. (1993). Racial misclassification of American Indians: Its effect on injury rates in Oregon, 1989 through 1990. American Journal of Public Health, 83(5), 681–684. https://10.2105/ajph.83.5.681

Trost, S., Beauregard, J., Chandra, G., Njie, F., Harvey, A., Berry, J., & Goodman, D. A. (2022). Pregnancy-Related Deaths Among American Indian or Alaska Native Persons: Data from Maternal Mortality Review Committees in 36 US States, 2017–2019. Centers for Disease Control and Prevention: Reproductive Health. https://web.archive.org/web/20230420211807/https://www.cdc.gov/reproductivehealth/maternal-mortality/erase-mm/data-mmrc-aian.html

From Partnership to Practice: Lessons in Native Maternal Health from Bakersfield American Indian Health Project

Authors: Nahla Holland and Alyssa Smith-Longee

Introduction

Current rates of pregnancy-related deaths in the United States emphasize gaps in care and support for different racial/ethnic groups. Non-Hispanic American Indian and Alaska Native (AI/AN) people experience deaths during pregnancy/up to one year postpartum at the highest rate compared to other groups, with a rate four times higher than non-Hispanic White people.1 However, even one death is too many; actionable, culturally relevant prevention efforts need to be a focus to ensure the wellness of AI/AN relatives.

The National Council of Urban Indian Health (NCUIH), in partnership with the Centers for Disease Control and Prevention (CDC) and the CDC Foundation (CDCF), supports Urban Indian Organizations (UIOs) in preventing pregnancy-related deaths in urban AI/AN communities. NCUIH also works to support connections of UIOs with local Maternal Mortality Review Committees (MMRCs) to help ensure that the stories of those who have passed, or transitioned, are treated with respect and that future prevention recommendations are culturally relevant. MMRCs are multidisciplinary groups that may include clinical and non-clinical committee members, and that convene at the state or local level to comprehensively review deaths that occur during or within 1 year of the end of pregnancy.2 AI/AN people living in urban areas may face distinct maternal health challenges. UIOs report that pregnancy and postpartum concerns affect outcomes before, during, and after pregnancy and reflect both clinical conditions and broader barriers to safety, stability, and care. These concerns include:

Pregnancy and postpartum health concerns identified by UIOs (2023)

These concerns make it clear that meaningful action is needed to support the health and well-being of urban AI/AN people during pregnancy and postpartum. UIOs play a critical role in identifying and responding to these needs within their communities. The following case study illustrates how one UIO is working to address these concerns and put these priorities into practice.

Case Study

As an example of the impacts that NCUIH has accomplished in working with UIOs to improve maternal health challenges in urban AI/AN communities, we would like to share a case study of the Bakersfield American Indian Health Project (BAIHP). BAIHP is an outreach and referral UIO located in Bakersfield, California, serving the AI/AN and larger community in Kern County. BAIHP embraces culturally community-driven models of wellness for its patients.

In 2025, BAIHP and NCUIH partnered under NCUIH’s CDCF MMRC grant to build capacity through NCUIH’s assistance for addressing maternal health concerns. One goal was to build a relationship by connecting the California urban AI/AN community and the local California MMRC, the CA Central Valley MMRC. BAIHP and NCUIH worked collaboratively to strengthen the MMRCs knowledge of UIOs and urban AI/AN communities through conversations with the CA Central Valley MMRC. With the support of the California Central Valley MMRC, two BAIHP staff members were onboarded to the committee to provide active input on AI/AN stories and values during the review process.

Additionally, with the dedicated funding for supporting pregnancy and postpartum health, BAIHP hired a part-time OB/GYN. The new OB/GYN supported RNs and FNPs at both BAIHP sites as they built out their perinatal and pediatrics programming. The BAIHP team developed obstetric policies and procedures and partnered with local Tribes, hospitals, and other health initiatives.

Indigenous Doula Scholarship Program 2025/2026 Graduates Trained by Three Moons Doula Collective. (Photo Credit: BAIHP)

BAIHP and NCUIH attended in-person and virtual national convenings on AI/AN pregnancy and postpartum health. During these discussions, BAIHP staff developed the idea to start an Indigenous doula scholarship program and a community doula plan. Indigenous doulas are a culturally rooted protective factor for our community, guiding our relatives through pregnancy and the post-partum period. This doula program was designed for Indigenous people to become trained and certified as a doula at no cost to them and provide care right in their communities. After certification, all the doulas who graduated provided care to BAIHP patients and to the larger community for one year. In April 2026, BAIHP graduated ten doulas from their program. This unique scholarship opportunity trained more Indigenous people to become doulas and allowed them direct access to their community to provide indigenous-centered birthing practices.

In August 2025, during their Bright Futures, Big Careers back-to-school event, BAIHP staff set up a maternity corner full of resources and professionals for expecting and recent parents, staffed by OB/GYNs, RNs, and a local doula. Over 500 attendees attended the event, where they could ask questions of care providers, receive perinatal supplies and resources, and learn about other trusted local specialty care providers in their community.

Bright Futures, Big Careers back-to-school event (Photo credit: BAIHP)

Additionally, after conversations with their California Central Valley MMRC, BAIHP joined calls with the California Maternal Quality Care Collective (CMQCC), a health initiative focused on improving perinatal health outcomes. BAIHP’s established partnerships with local doulas, graduate students, hospitals, health departments, Tribes, the California Maternal Quality Care Collective (CMQCC), and the Black Infant and Maternal Health Initiative informed the broader community about pregnancy and postpartum resources for AI/AN people in the area.

The work in progress at BAIHP exemplifies the exceptional role UIOs play in their communities as care providers but also in promoting strength-based programming and upholding Indigenous values of wellness. BAIHP and UIOs in general offer tremendous opportunities to connect our urban relatives with the best perinatal care and to create culturally relevant, strength-based initiatives developed by our communities.

BAIHP and NCUIH at National Indian Health Board Convening on Tribal Maternal Health 2025. From left to right: Alanna Costello (BAIHP), Alyssa Smith-Longee (NCUIH), Nahla Holland (NCUIH)

BAIHP and NCUIH at National Indian Health Board Convening on Tribal Maternal Health 2025. From left to right: Alanna Costello (BAIHP), Alyssa Smith-Longee (NCUIH), Nahla Holland (NCUIH)

Tara Gray, Tribal Liaison at BAIHP, presenting at the NCUIH 2026 Annual Conference Maternal Health Session, alongside other Subject Matter Experts.

Tara Gray, Tribal Liaison at BAIHP, presenting at the NCUIH 2026 Annual Conference Maternal Health Session, alongside other Subject Matter Experts. From left to right: Dr. Brian Thompson (Upstate Medical University), Janelle Palacios (Encoded 4 Story), Tara Gray (BAIHP)

Recommendations and Best Practices

UIOs like BAIHP are uniquely positioned to integrate clinical care with community trust and community-level programming. The partnership between BAIHP and NCUIH reinforced that investing in UIOs and their maternal health efforts yields both systemic change (MMRC representation) and direct community impact (doula graduates, outreach events, new care policies). To facilitate a community of learning, NCUIH hosted a maternal health session at its 2026 Annual Conference, where alongside other subject matter experts, BAIHP Tribal Liaison, Tara Gray, shared best practices and recommendations from the partnership. While the session addressed barriers and challenges facing AI/AN mothers, it centered on community-led solutions.

Recommendations and best practices to strengthen maternal health outcomes at UIOs:

  • Community Members as Care Providers. Training and certifying community members as doulas and birth workers (Indigenous Doula Programs/Scholarships).
  • Center Strength-Based, Culturally Driven Programming. Hosting community education and events grounded in Indigenous values of wellness and community strengths. (see image)
  • Meeting the community where they are. Integrating maternal health education and services during other community events or home visiting programs.
  • Incorporating community voices through local and national partnerships. MMRCs should make efforts to connect with the UIOs in their respective states, and vice versa, to ensure urban AI/AN voices don’t go unheard.
  • Consistent funding to ensure maternal health promotion efforts can continue without gaps or delays.
Protective factors within AI/AN communities for pregnancy and postpartum health

Protective factors within AI/AN communities for pregnancy and postpartum health

MMRCs also play an important role in strengthening maternal health through prioritizing community and AI/AN voices in the review process.

To strengthen maternal health outcomes for AI/AN communities, MMRCs should:

  • Address systemic biases and trauma of AI/AN people
  • Examine influences such as Indigenous determinants of health
  • Highlight protective factors within case abstraction
  • Protect AI/AN committee members throughout the review process
  • Respect traditional knowledge
  • Center the individual’s story and lived experience over data points
  • Fund and empower community-led maternal health solutions
  • Establish and uphold continued relationships with UIOs, Tribes, and other AI/AN serving organizations (including transparent data sharing agreements)
Conclusion

Recent data show that nearly all AI/AN pregnancy-related deaths reviewed were preventable.3 No voices should go unheard, no stories untold, and strengthening maternal health efforts should remain a priority with UIOs and Tribes, and local, federal, and national stakeholders. To learn more about how to get involved, please contact research@ncuih.org. For more information on AI/AN pregnancy and postpartum health, and how NCUIH is working with UIOs and national partners to promote healthier communities for our pregnant and postpartum relatives, please visit NCUIH.org/maternal-health.

Thank you to Bakersfield American Indian Health Project for their thoughtful review and input on this post.

1 Centers for Disease Control and Prevention. (2025, December 18). Data from the Pregnancy Mortality Surveillance System. https://www.cdc.gov/maternal-mortality/php/pregnancy-mortality-surveillance-data/index.html?cove-tab=1
2 Centers for Disease Control and Prevention. (2024, May 15). About Maternal Mortality Review Committees. https://www.cdc.gov/maternal-mortality/php/mmrc/index.html
3 Centers for Disease Control and Prevention. (2025a, August 22). Pregnancy-related deaths among American Indian or Alaska native women: Data from maternal mortality review committeeshttps://www.cdc.gov/maternal-mortality/php/data-research/mmrc/aian.html?cove-tab=3