Promoting Ethical Research With American Indian and Alaska Native People Living in Urban Areas

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Authors: Nicole P. Yuan, Jami Bartgis, and Deirdre Demers

Publication Year: 2014

Last Updated:

Journal: American Journal of Public Health

Keywords: Data Collection; Health Disparities; Ethical Research

 

Short Abstract: Most health research with American Indian and Alaska Native (AI/AN) people has focused on tribal communities on reservation lands. Few studies have been conducted with AI/AN people living in urban settings despite their documented health disparities compared with other urban populations.

 

Abstract: Most health research with American Indian and Alaska Native (AI/AN) people has focused on tribal communities on reservation lands. Few studies have been conducted with AI/AN people living in urban settings despite their documented health disparities compared with other urban populations. There are unique considerations for working with this population. Engaging key stakeholders, including urban Indian health organization leaders, tribal leaders, research scientists and administrators, and policymakers, is critical to promoting ethical research and enhancing capacity of urban AI/AN communities. Recommendations for their involvement may facilitate an open dialogue and promote the development of implementation strategies. Future collaborations are also necessary for establishing research policies aimed at improving the health of the urban AI/AN population.

 

Source: Link to Original Article.

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Source: https://ajph.aphapublications.org/doi/pdf/10.2105/AJPH.2014.302027?role=tab

Type of Resource: Peer-reviewed scientific article

Responsible Research With Urban American Indians and Alaska Natives

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Authors: Rosalina D. James et al.

Publication Year: 2018

Last Updated:

Journal: American Journal of Public Health

Keywords: Data Collection; Mistrust

 

Short Abstract: American Indian and Alaska Native (AI/AN) communities harbor understandable mistrust of research. Outside researchers have historically controlled processes, promulgating conclusions and recommended policies with virtually no input from the communities studied.

 

Abstract: American Indian and Alaska Native (AI/AN) communities harbor understandable mistrust of research. Outside researchers have historically controlled processes, promulgating conclusions and recommended policies with virtually no input from the communities studied. Reservation-based communities can apply sovereignty rights conferred by the federal government to change this research trajectory. Many tribes now require review and approval before allowing research activities to occur, in part through the development of regulatory codes and oversight measures. Tribal oversight ensures that research is directed toward questions of importance to the community and that results are returned in ways that optimize problem solving. Unfortunately, tribal governance protections do not always extend to AI/ANs residing in urban environments. Although they represent the majority of AI/ANs, urban Indians face an ongoing struggle for visibility and access to health care. It is against this backdrop that urban Indians suffer disproportionate health problems. Improved efforts to ensure responsible research with urban Indian populations requires attention to community engagement, research oversight, and capacity building. We consider strategies to offset these limitations and develop a foundation for responsible research with urban Indians.

 

Source: Link to Original Article.

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Source: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6236730/pdf/AJPH.2018.304708.pdf

Type of Resource: Peer-reviewed scientific article

Indigenous Evaluation Toolkit: An Actionable Guide for Organizations Serving American Indian / Alaska Native Communities through Opioid Prevention Programming

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Authors: Seven Directions: A Center for Indigenous Public Health

Publication Year: 2023

Last Updated:

Journal:

Keywords: Awareness; Cultural Sensitivity and Appropriateness; Data Collection; Ethnicity; Mental and Behavioral Health; Race; Substance Use; Data Collection; Research Methodology; Toolkit

 

Short Abstract: Indigenous communities have always engaged in review and reflection. Western research and evaluation frameworks may not align with ancestral and cultural wisdom, and we hope to address this through our Indigenous Evaluation Toolkit.

 

Abstract: Indigenous communities have always engaged in review and reflection. Western research and evaluation frameworks may not align with ancestral and cultural wisdom, and we hope to address this through our Indigenous Evaluation Toolkit. As Indigenous communities continue to shape programming to reflect their own stories, ways of knowing, and cultural perspectives, there is a growing need for frameworks that support the infusion of this knowledge into the evaluation of their programs focused on substance use prevention, treatment, and recovery support. Through step-by-step guidance, worksheets, and storytelling, this toolkit offers communities an iterative, reflective, continuous learning process for beginning or incorporating Indigenous evaluation.

 

Source: Link to Original Article.

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Source: https://www.indigenousphi.org/tribal-opioid-use-disorders-prevention/indigenous-evaluation-toolkit

Type of Resource: Toolkit

Standards of Care in Diabetes—2023 Abridged for Primary Care Providers

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Authors: American Diabetes Association

Publication Year: 2023

Last Updated: February 16, 2023

Journal: American Diabetes Association

Keywords: Awareness; Diabetes; General Materials; Health Disparities; Health Care Reform; NCUIH Newsletters; Social Determinants of Health

 

Short Abstract: This abridged version of the current Standards of Care contains the evidence-based recommendations most pertinent to primary care. The recommendations, tables, and figures included here retain the same numbering used in the complete Standards of Care.

 

Abstract: This abridged version of the current Standards of Care contains the evidence-based recommendations most pertinent to primary care. The recommendations, tables, and figures included here retain the same numbering used in the complete Standards of Care. All recommendations included here are substantively the same as in the complete Standards of Care. The abridged version does not include references. The complete 2023 Standards of Care, including all supporting references, is available at professional. diabetes.org/standards.

 

Source: Link to Original Article.

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Source: https://diabetesjournals.org/clinical/article/doi/10.2337/cd23-er02a/148453/Erratum-Standards-of-Care-in-Diabetes-2023

Type of Resource: Peer-reviewed scientific article

The Three Sisters Garden: A Cultural Approach to Cultivating American Indian/Alaska Native (AI/AN) Psychological Service Providers.

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Authors: Gray, J. S., Wheeler, M. J., & Bender, N. M.

Publication Year: 2021

Journal: American Psychological Association

Keywords: Cultural Sensitivity and Appropriateness; Health Disparities; Psychology; Social Determinants of Health

 

Short Abstract: With the current emphasis on diversity, equity, and inclusion (DEI) in education and psychological services, it is important to understand the culturally important issues for American Indian/Alaska Native students training of psychological services providers.

 

Abstract: With the current emphasis on diversity, equity, and inclusion (DEI) in education and psychological services, it is important to understand the culturally important issues for American Indian/Alaska Native students training of psychological services providers. The Three Sisters Model can provide the necessary guidance and supports to provide the important DEI aspects for the development of culturally sensitive and humble psychological service providers while retaining AI/AN ones.

 

Source: https://psycnet.apa.org/record/2022-53783-001

Type of Resource: Peer-reviewed scientific article

 

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Photo-Based Evaluation: A Method for Participatory Evaluation With Adolescents

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Authors: Deinera Exner-Cortens, Kathleen C. Sitter, Marisa Van Bavel, Alysia Wright

Publication Year: 2021

Last Updated: February 5, 2021

Journal: American Journal of Evaluation

Keywords: Awareness; Development; Gender Identity; Information Technologies; Social Determinants of Health; Health Promotion; Youth; Evaluation; Engagement; Gender; Healthy Relationships; WiseGuyz

 

Short Abstract: Actively engaging adolescents in meaningful program evaluation is a topic of growing interest. One possibility for such engagement is the use of photographs as part of visual evaluation, so that youth can directly engage with the research process. In this Method Note, we describe the development and implementation of a participatory, photo-based evaluation method for youth health promotion/prevention programs.

 

Abstract: Actively engaging adolescents in meaningful program evaluation is a topic of growing interest. One possibility for such engagement is the use of photographs as part of visual evaluation, so that youth can directly engage with the research process. In this Method Note, we describe the development and implementation of a participatory, photo-based evaluation method for youth health promotion/prevention programs. Youth in this study were participants in a gender-transformative healthy relationships program for boys. We present literature supporting the use of photographs as a visual research method and for involving youth as active participants in evaluation, and explore the feasibility, utility, and acceptability of this innovative application of existing methods based on researcher experience and youth feedback. We conclude with implications for photo-based evaluation of health promotion/prevention programs, highlighting the promise of this method for promoting critical youth engagement in the evaluation and creating meaningful knowledge translation tools. Photo-based evaluation could be a useful methodology for engaging AI/AN youth in research. More active engagement in the research process as well as having more control over the information the individual shares may help to alleviate some of the risks that are associated with being involved in research studies for AI/AN communities. Previous research mentioned in the article showed positive results when photo-voice was used with urban First Nations youth. (https://www.tandfonline.com/doi/full/10.1080/24694193.2016.1273977).

 

Source: Link to Original Article.

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Source: https://journals.sagepub.com/doi/full/10.1177/1098214020927785

Type of Resource: Peer-reviewed scientific article

Making Amends: Recommended Strategies and Actions to Improve the Health and Safety of American Indian and Alaska Native Mothers and Infants

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Authors: U.S. Secretary of Health and Human Services Advisory Committee on Infant and Maternal Mortality (ACIMM)

Publication Year: 2022

Last Updated: December 2022

Journal:

Keywords: Awareness; Ethnicity; Federal Health Care; Health Care Access; Health Disparities; IHS; Infant Mortality; Medicare; Medicaid; Minority Groups; Misclassification of AI/AN; Pregnancy; Women's Health; Social Determinants of Health

 

Short Abstract: Report submitted in to US HHS Secretary with recommendations for the federal government to reconcile past actions and step up to the obligations to American Indians and Alaska Natives (AI/AN). Recommendations are based on the findings of previous reports on the health of AI/AN people, populations, and communities, ACIMM’s analysis of maternal health and birth outcome-related data, presentations by representatives of federal health programs, and the testimony and input of over 88 individuals with relevant lived and professional experience.

 

Abstract: Report submitted in to US HHS Secretary with recommendations for the federal government to reconcile past actions and step up to the obligations to American Indians and Alaska Natives (AI/AN). Recommendations are based on the findings of previous reports on the health of AI/AN people, populations, and communities, ACIMM’s analysis of maternal health and birth outcome-related data, presentations by representatives of federal health programs, and the testimony and input of over 88 individuals with relevant lived and professional experience. 59 strategies are offered to support three overarching recommendations: I. Make the health and safety of AI/AN mothers and infants a priority for action. II. Improve the living conditions of AI/AN mothers and infants and assure universal access to high quality healthcare III. Address urgent and immediate challenges that disproportionately affect AI/AN women before, during, and after pregnancy.

 

Source: Link to Original Article.

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Source: https://www.hrsa.gov/sites/default/files/hrsa/advisory-committees/infant-mortality/birth-outcomes-AI-AN-mothers-infants.pdf

Type of Resource: Report

Prevention in Our Native Communities Vol 3 Issue 1 Fall 2022

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Authors: National American Indian and Alaska Native Prevention technology transfer center (PTTC) network

Publication Year: 2022

Last Updated: November 5, 2022

Keywords: Minority Groups; Suicide and Suicide Prevention; Social Determinants of Health

 

Short Abstract: This issue focuses on the negative impact stigma has on Natives in the early phases of the development of a substance use disorder. People in this situation could profit from early intervention but may feel embarrassed because of the stigma associated with substance use/abuse. The main article describes ways to ensure that culturally appropriate prevention efforts are both trauma-informed and non-stigmatizing.

 

Source: Link to Original Article.

Source: https://pttcnetwork.org/centers/national-american-indian-alaska-native-pttc/product/prevention-our-native-communities-vol-3

Type of Resource: Best Practices Newsletter

Keeping Us Whole: Preventing Missing and Murdered Indigenous People – Podcast Series

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Authors: US Dept. of Health and Human Services: Administration for Native Americans

Publication Year: 2022

Last Updated: April 26, 2022

Keywords: Awareness; Childcare; Injury and Trauma; NCUIH Newsletters; Population Information; Violence

 

Short Abstract: For generations, American Indian, Alaskan Native and Native Hawaiian peoples have faced an ongoing crisis of violence, human trafficking, and an epidemic of Missing and Murdered Indigenous People (also known as MMIP). To bolster prevention efforts to mitigate the MMIP epidemic, the Administration for Native Americans (ANA), a program office within the Administration for Children and Families (ACF), collaborated with the U.S. Department of Health and Human Services Secretary’s Interdepartmental Council on Native American Affairs (ICNAA) to develop a podcast series to raise awareness, provide prevention resources and educate listeners on MMIP.

 

Source: Link to Original Article.

Source: https://www.acf.hhs.gov/ana/podcast/keeping-us-whole-preventing-missing-and-murdered-indigenous-people-podcast-series

Type of Resource: Podcast Series

A Community-Based Evaluation of a Culturally Grounded, American Indian After-School Prevention Program: The Value of Practitioner-Researcher Collaboration

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Authors: Brooke de Heer, Jade Heffern, Julianna Cheney, Aaron Secakuku, Julie Baldwin

Publication Year: 2020

Last Updated: September 2020

Journal: American Indian and Alaskan Native Mental Health Research

Keywords: Childcare; Mental and Behavioral Health

 

Short Abstract: Programs serving American Indian (AI) youth are an important component of maintaining cultural identity and healthy lifestyles. The current research took a community-engaged approach to evaluate an urban AI youth after-school program that has transitioned into a culturally grounded prevention program. Ways to create a successful research collaboration between AI communities and academics is discussed as well as implications for understanding the importance of culturally-grounded programs for AI youth who reside in urban areas. Overall, the cultural and health components that are integrated into the after-school program were highlighted as primary strengths because they help foster a healthy lifestyle and deeper connection to the heritage/culture for the youth who participated.

 

Source: Link to Original Article.

Type of Resource: Peer-reviewed scientific article